Follow Up Neurology

Emmett had his follow up appointment with the neurologist today. Went over the results of the EEG that was done on the 15th, the results came back normal. Because it showed normal results it doesn't necessarily mean it wasn't seizures that Emmett was having. The neurologist is still thinking 50/50% chance that it is seizures. We just need to keep watching Emmett and if he has anymore episodes then they will put him on some seizure medication. We are grateful for the the test results coming back normal.

Early Intervention

The occupational therapist from early intervention came today to evaluate Emmett. He did such a great job and was having fun with everything. When the therapist walked in Emmett said: "Here to help Emmett walk?" The OT said for walking he is at a 12-18 month age range, but everything else he is right where he needs to be.

Weird Episodes

Emmett's been having some episodes that he would space out into space, breath heavily and his heart rate goes up between 120-130. We've talked with cardiology about it and since he's done this before and it is not his heart, our cardiologist referred us to neurology. Today we met with the neurologist, he said that it's a 50/50% chance that if it's a seizure it would be a Complex Partial Seizure. Also the reason he is not walking is that it's neurological. We go back March 11th for an EEG. If it's a seizure they will treat it with a medication. We have physical therapy coming to work with him to help with his walking. Please keep Emmett in your prayers. Thanks!

This is our awesome little "♥" buddy Mason!  

If you would be so kind, go to this page, like it and vote for him! Choose FIVE stars to give him the most points and you can vote once every 24 hours! Contest ends Halloween night at midnight!

Somewhere!

Somewhere…someplace… today…
A family is waiting to hear…
Is something wrong with their baby?
The answers aren’t quite clear…

This family has entered an unwanted world…
And they just don’t know what to expect…
Somewhere…someplace… today
They first heard the words: heart defect.

And how they hoped this was not true…
And thought… this cannot be…
I too… know just how this feels…
For one day…this was me.

Somewhere…someplace…today…
A man and a woman embrace…
Their baby is in surgery…
They long to see her face…

They haven’t got to hold her yet…
Without…a cord or line…
They pace the room awaiting news…
And hope she’ll be just fine.

Prayers fill this busy waiting room…
And mom and dad are scared…
Somewhere…someplace..today…
The tiniest hearts are repaired.

Somewhere…someplace…today…
A child’s growing fast…
Smiling,laughing,thriving…
His mom thinks…can this last?

It’s almost easy…to forget…
That anything is wrong…
Somewhere…someplace..today…
Her child seems so strong.

Somewhere…someplace… today…
A little boy fights…just to live
A father holds his tiny hand…
His love…all he can give…

The doctor’s are all baffled…
They fear that he might die…
Somewhere…someplace…today…
A family says goodbye…

Somewhere…someplace…each year..
More than 40,000 families will see…
What it means…when something’s wrong…
They’ll face a CHD.

Today…for just a moment…
Stop…remember…reflect…
Make time to tell someone you know…
“I’ve been changed by a heart defect.”

Author - Stephanie Husted

I'm Just a Little Heart Mom

I'm just a little heart mom,
Trying to get some sleep.
Trying to rest my tired mind,
But all I do is weep.
My heart is broken beond repair,

All I feel is utter despair.
My mind won't shut off at night,
Even though I try with all my might.
Tomorrow will be a better day,
That is what I have to say.
I have to belive it with all my heart,
Before my day will even start.
I have no clue what the day may bring,
It could be happiness or depressing.
I'm so tired, but with a smile on my face,
I accept my heart world journey with grace.
I have to be a super heart mom, the way its ment to be,
Because my little heart hero depends on me.

By: Chrissie Taylor (Kylie's mom)

Prayers!!

This is our cute little heart friend Kylie! She has been in the hospital for months waiting for a new "Lub-A-Dub" and has been declining. She is not doing good and needs the extra prayers! She is now in the CICU and is having a procedure do

ne on her heart today that can help her failing heart. If the procedure does not work, her family has been advised they should say their "good-byes" to her...... this little miss needs a miracle and FAST!!! We love you Kylie and Chrissie!