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Somewhere!

Somewhere…someplace… today…
A family is waiting to hear…
Is something wrong with their baby?
The answers aren’t quite clear…

This family has entered an unwanted world…
And they just don’t know what to expect…
Somewhere…someplace… today
They first heard the words: heart defect.

And how they hoped this was not true…
And thought… this cannot be…
I too… know just how this feels…
For one day…this was me.

Somewhere…someplace…today…
A man and a woman embrace…
Their baby is in surgery…
They long to see her face…

They haven’t got to hold her yet…
Without…a cord or line…
They pace the room awaiting news…
And hope she’ll be just fine.

Prayers fill this busy waiting room…
And mom and dad are scared…
Somewhere…someplace..today…
The tiniest hearts are repaired.

Somewhere…someplace…today…
A child’s growing fast…
Smiling,laughing,thriving…
His mom thinks…can this last?

It’s almost easy…to forget…
That anything is wrong…
Somewhere…someplace..today…
Her child seems so strong.

Somewhere…someplace… today…
A little boy fights…just to live
A father holds his tiny hand…
His love…all he can give…

The doctor’s are all baffled…
They fear that he might die…
Somewhere…someplace…today…
A family says goodbye…

Somewhere…someplace…each year..
More than 40,000 families will see…
What it means…when something’s wrong…
They’ll face a CHD.

Today…for just a moment…
Stop…remember…reflect…
Make time to tell someone you know…
“I’ve been changed by a heart defect.”

Author - Stephanie Husted

I'm Just a Little Heart Mom

I'm just a little heart mom,
Trying to get some sleep.
Trying to rest my tired mind,
But all I do is weep.
My heart is broken beond repair,

All I feel is utter despair.
My mind won't shut off at night,
Even though I try with all my might.
Tomorrow will be a better day,
That is what I have to say.
I have to belive it with all my heart,
Before my day will even start.
I have no clue what the day may bring,
It could be happiness or depressing.
I'm so tired, but with a smile on my face,
I accept my heart world journey with grace.
I have to be a super heart mom, the way its ment to be,
Because my little heart hero depends on me.

By: Chrissie Taylor (Kylie's mom)

Prayers!!

This is our cute little heart friend Kylie! She has been in the hospital for months waiting for a new "Lub-A-Dub" and has been declining. She is not doing good and needs the extra prayers! She is now in the CICU and is having a procedure do

ne on her heart today that can help her failing heart. If the procedure does not work, her family has been advised they should say their "good-byes" to her...... this little miss needs a miracle and FAST!!! We love you Kylie and Chrissie!

Have You Ever Wondered

Have you ever wondered what to tell you child about the scar they wear? A heart mom shared this and I loved it, so I thought I would share it.. Stephane from Nie Nie diaries was talking to Elder Holland... "As we talked, he told me to be proud of my scars. 'We look for Christ's scars because they are evidence of what he did for us. They will be the first thing He shows us when we see Him again. Your scars tell a story too. Although they may not make you feel attractive, they are a witness of a miracle, that God blessed you to live, and that you have accomplished very difficult things."

Awesome right? 
Our kiddos are miracles... They are evidence that there is a God. And even though they wear the scars on their body, I feel like daddy and mommy have accomplished difficult things too! Our scars are just invisible to the eye. How lucky are we, that no matter where we are in our journey, waiting for another miracle, living each amazing moment, or having loved a true miracle for even a short time.... We got it!!! We did love, we did live, we did enjoy!!! We are sooooo lucky.

CHD Poem

We've all watched our children intently...

Memorizing each line...

And let them leave our loving arms...

And prayed things would be fine.

We've paced the halls awaiting news...

And wondered just what lie in store...

We've flet our own heart's racing as...

We walked through an ICU door...

We've seen the child we love so much...

Struggling to overcome...

The lines...the cords...the monitors...

No thoughts...no words...would come...

We've prayed for an improvement...

We've laid it in God's hands..

We've cried...we've hoped... we've worried...

We've wondered of Gods plan...

We've learned just how a heart works...

each valve and artery...

we've asked a lot of questions...

we've faced each surgery.

And somewhere down this worn path...

We've met more families...

Who know exactly what it means...

To live with this disease.

We've smiled at every triumph...

And shared in every sigh...

we've prayed for a child that struggles...

And each family that must say goodbye.

Some battles are fought with bullets...

And weapons made of war...

While these are fought in silence...

Behind a hospital door...

We've wondered what lies in our future...

We've been thankful for just one more day...

We've stopped and watched with tear-filled eyes...

Our children...as they play.

We've struggled with ounces and weight gain...

Why won't my child just eat?

But heart mom's...we're a tough group...

We've learned how to face a defeat.

We've faced those moments...others do...

When life has got us stressed...

But it doesn't take long to remember...

That we are richly blessed.

We've taken on a whole new role...

One we wouldn't exchange if we could...

We know that life is difficult...

We hold onto all that is good.

God chose each of us carefully...

I do believe he smiled...

Some bonds begin with strangers...

And just one special child.

Author: Unkown